Haemophilia is a lifelong disease but with proper treatment and self-care, most people with haemophilia can maintain an active lifestyle.
Factor replacement therapy is an essential part of its management. Help yourself continue to take an active role in your treatment by keeping informed. Don't be afraid to ask your doctor questions about haemophilia or your treatment. You can also use books, magazines and online resources to learn more about haemophilia and stay up-to-date on new developments. Learn as much as you can about your condition. While living with haemophilia can be a challenge, knowing more about your condition and treatment will give you better control over your condition and your life.
Keeping active is also a vital part of your haemophilia management. Maintaining fitness and keeping joints and muscles healthy is an important goal for someone with haemophilia.
Clotting factor replacement therapy can stop or even prevent bleeds but it cannot restore joint and muscle function after a bleed occurs. Regular exercise can help protect joints by increasing the size and power of muscles and strengthening tissues around the joints so they can cope much better with everyday stresses and strains.
Stronger muscles offer better joint support and this, in turn, can reduce the risk of bleeding. Exercise is also important for general health, fitness and self-esteem.
However, it is also important that any physical activity that is carried out does not cause a bleed or exacerbate previous problems or injuries. It’s about finding something that is right for you. Your healthcare team is available for advice and guidance.