I dont even know if it was me or my mom who told most of my family. I felt really uncomfortable telling my friends at first, for the same reason. I didnt know how to answer the "whats that" question I knew they would ask. I had to start wearing hats and gloves to school everyday, which is against the dress code for everyone else, so I got weird looks, and had to learn quick how to explain it. Oddly more to the teachers than students because they were yelling at me to take my hats off. How many people buy the excuse "I have a doctors note for my hat"? I started carrying a copy with me. I just tell people the simplest explaination unless they dig deeper; lupus is an autoimmune disease where my immune system attacks healthy parts of my body and makes me sick. That is pretty much exactly what I say every time.
"A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard
Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.