Self Help Clearinghouse
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
International network. Founded 1988. Support for families, medical professionals and others dealing with individuals that have Smith-Lemli-Opitz (RSH) syndrome. Research funding also available via a grant process. Phone, social media (Facebook/Twitter/Yahoo chat group) and e-mail support available. Bi-annual conferences and newsletter.
Smith-Lemli-Opitz / RSH Foundation
c/o Gretchen Noah
P.O. Box 10598
Fargo, ND 58106-0598
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
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