- South Carolina, USA.
A few fields to allow you to share some of your scoliosis history if you want to.
- What type of spinal curvature?:
- Congenital Scoliosis
- Diagnosis Details:
- Diagnosed 12/2015 with spondylocostal dysostosis (or dysplasia), autosomal recessive. It is an inheritable condition >1% of the population has. Basically, it manifests as vertebral-segmentation defects with rib anomalies- resulting in scoliosis- and short-trunk dwarfism. I personally have cervical, thoracic, and lumbar hemivertebrae; fused ribs; 4 missing ribs; short trunk; and short neck. Genetic evaluation says I am essentially a textbook case.
Congenital structural scoliosis and vertebral and rib anomalies is what I was originally diagnosed with after birth 9/1990.
Mom tried to miscarry at 8 weeks- the miscarriage mark for something wrong with the development of the embryo, either genetic or chromosomal.
Fused ribs. Hemivertebrae, fused and partial vertebrae and a combo. Doctors didn't even know if I would walk... but I walked at 9 months!
- What curve pattern?:
- Single thoracolumbar
- Curve Pattern Details:
- C shape on right side. T10-L3.
Pre-op about 34° Post-op about 28° at 16 months old. Now a 50° curve at 24 years old.
- Had surgery?:
- Posterior surgery
- Surgery Details:
- Spinal fusion/autograft (from my hip) at 16 months of age- to prevent further scoliotic and kyphotic curvature
- Worn a brace?:
- TLSO brace (eg Boston brace)
- Bracing Details:
- Wore a brace until about 9 years old. Only took it off for showering, swimming, and sleeping.
- Been cast?:
- Casting for other reasons
- Casting Details:
- After spinal fusion surgery.