National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Pediatric Cardiomyopathy is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
- Asymmetrical Septal Hypertrophy
- Familial Congestive Cardiomyopathy
- Familial Dilated Cardiomyopathy (FDC)
- Hypertrophic Obstructive Cardiomyopathy (HOCM)
- Idiopathic Hypertrophic Subaortic Stenosis
- Idiopathic Dilated Cardiomyopathy
- Non-obstructive Hypertrophic Cardiomyopathy
- Arrhythmogenic Right Ventricular Dysplasia (ARVD)
- Hypertrophic Cardiomyopathy (HCM)
- Restrictive Cardiomyopathy
- Dilated Cardiomyopathy
Pediatric cardiomyopathy is a rare heart condition that affects infants and children. Specifically, cardiomyopathy means disease of the heart muscle (myocardium). Several different types of cardiomyopathy exist and the specific symptoms vary from case to case. In some cases, no symptoms may be present (asymptomatic); in many cases, cardiomyopathy is a progressive condition that may result in an impaired ability of the heart to pump blood; fatigue; heart block; irregular heartbeats (tachycardia); and, potentially, heart failure and sudden cardiac death.
Cardiomyopathy may be termed ischemic or nonischemic. Ischemic cardiomyopathy refers to cases that occur due to a lack of blood flow and oxygen (ischemia) to the heart. Such cases often result from hardening of the arteries (coronary artery disease). Nonischemic cardiomyopathy refers to cases that occur due to structural damage or malfunction of the heart muscle. Nearly all cases of pediatric cardiomyopathy are nonischemic. This report deals with nonischemic pediatric cardiomyopathy.
Cardiomyopathy may also be termed primary or secondary. Primary cardiomyopathy refers to cases where cardiomyopathy occurs by itself or for unknown reasons (idiopathic). Secondary cardiomyopathy refers to cases where the disease occurs secondary to a known cause such as heart muscle inflammation (myocarditis) caused by viral or bacterial infections; exposure to certain toxins such as heavy metals or excessive alcohol use; or certain disorders that affect the heart and/or additional organs systems. According to the Pediatric Cardiomyopathy Registry, approximately 79 percent of pediatric cardiomyopathy cases occur for unknown reasons (idiopathic).
Nonischemic cardiomyopathy may be further divided into four subtypes based upon the specific changes within the heart. These subtypes are: dilated, hypertrophic, restrictive and arrhythmogenic right ventricular dysplasia.
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231-4596
NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
Montgomery Heart Foundation for Cardiomyopathy
1830 E. Monument St./Suite 7300
Baltimore, MD 21205
Chiltern Court, Unit 10
Bucks, Intl HP5 2PX
Tel: +44 (0)1494 791224
Fax: +44 (0)1494 797199
Tel: 0800 018 1024
Hypertrophic Cardiomyopathy Association
328 Green Pond Rd
P.O. Box 306
Hibernia, NJ 07842
Cardiac Arrhythmias Research and Education Foundation, Inc.
26425 NE Allen Street #103
P.O. Box 369
Duvall, WA 98019
Kids With Heart National Association for Children's Heart Disorders, Inc.
P.O Box 12504
Green Bay, WI 54307-2504
Little Hearts, Inc.
P.O. Box 171
110 Court Street, Suite 3A
Cromwell, CT 06416
Congenital Heart Information Network (C.H.I.N.)
101 N Washington Ave, Suite 1A 101 N Washington Ave, Suite 1A
Margate City, NJ 08402-1195
Children's Cardiomyopathy Foundation (CCF)
PO Box 547
Tenafly, NJ 07670
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
HOPE (The Heart of Pediatric Electrophysiology)
PO Box 519
Park Ridge, NJ 07565
Email: firstname.lastname@example.org, email@example.com
Irish Heart Foundation
4 Clyde Road
Tel: +353 1 6685001
Fax: +353 1 6685896
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This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html