The North of England Collaborative Cerebral Palsy Survey - NECCPS collects information on children with cerebral palsy to help to understand all aspects of cerebral palsy and the impact of disability.
We collect details of every death of an infant (less than a year), every still birth and every late miscarriage after 20 weeks of pregnancy to help us understand the causes of death with the view to improve future care.
We obtain data on all congenital abnormalities arising within the population of the former Northern Region whether resulting in miscarriages, terminations of pregnancy or registered births and whether diagnosed antenatally or later. This data is used for rmany reasons, including to monitor for causes of congenital anomaly and to provide information on the effectiveness of screening.
We collect information on all mothers whose pregnancy is complicated by pre-existing diabetes. These pregnancies carries a higher rate of complications than those in women without diabetes. The data collected is used to understand the reasons for these complications and will help us to improve the care for these pregnancies.
Twins and higher order multiples have become much more common in recent years. The survey collects data to help to improve the outcome of twins and higher multiples in the region.