|Cystic Fibrosis Foundation|
|6931 Arlington Road|
|Bethesda, MD 20814|
|Phone: ||1-800-FIGHT CF (1-800-344-4823)|
|Fax: ||(301) 951-6378|
|Web Address: ||www.cff.org|
The CFF coordinates, supports, and accredits cystic
fibrosis centers and programs, supports research, and advocates for patients.
You can find information about things like treatment, care centers, clinical
trials, and staying healthy. You can also buy medicines from the online
|Genetics Home Reference, U.S. National Library of
|8600 Rockville Pike|
|Bethesda, MD 20894|
|Phone: ||1-888-FIND-NLM (1-888-346-3656)|
|Fax: ||(301) 402-1384|
|Web Address: ||www.ghr.nlm.nih.gov|
The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause
disease. It also has links to additional resources for people who
have genetic conditions and for their families.
|KidsHealth for Parents, Children, and
|10140 Centurion Parkway North|
|Jacksonville, FL 32256|
|Phone: ||(904) 697-4100|
|Fax: ||(904) 697-4220|
|Web Address: ||www.kidshealth.org|
This website is sponsored by the Nemours Foundation. It
has a wide range of information about children's health, from allergies and
diseases to normal growth and development (birth to adolescence). This website
offers separate areas for kids, teens, and parents, each providing
age-appropriate information that the child or parent can understand. You can
sign up to get weekly emails about your area of interest.
|March of Dimes|
|1275 Mamaroneck Avenue|
|White Plains, NY 10605|
|Phone: ||(914) 997-4488|
|Web Address: ||www.marchofdimes.com|
The March of Dimes tries to improve the health of babies
by preventing birth defects, premature birth, and early death. March of Dimes
supports research, community services, education, and advocacy to save babies'
lives. The organization's website has information on premature birth, birth
defects, birth defects testing, pregnancy, and prenatal care.
|National Heart, Lung, and Blood Institute
|P.O. Box 30105|
|Bethesda, MD 20824-0105|
|Phone: ||(301) 592-8573|
|Fax: ||(240) 629-3246|
|TDD: ||(240) 629-3255|
|Web Address: ||www.nhlbi.nih.gov|
The U.S. National Heart, Lung, and Blood Institute
(NHLBI) information center offers information and publications about preventing
- Diseases affecting the heart and circulation, such as heart
attacks, high cholesterol, high blood pressure, peripheral artery disease, and
heart problems present at birth (congenital heart diseases).
- Diseases that affect the lungs, such as asthma, chronic
obstructive pulmonary disease (COPD), emphysema, sleep apnea, and
- Diseases that affect the blood, such as anemia,
hemochromatosis, hemophilia, thalassemia, and von Willebrand disease.