Dear Dr. Sclafani,
there's a another site in germany where CCSVI diagnosis and treatment is offered, in Offenbach (very near to Frankfurt, almost like a suburb). They recently put up a website: www.ccsvi-center.de
, but the english version isn't finished yet, almost empty. And ccsvi-frankfurt.de, which is a bit confusing as they aren't exactly located in Frankfurt, but Dr. Vogl is). They say that they "have established a network of partners" for diagnosis and therapy with these physicians ( http://www.ccsvi-center.de/Diagnostik.htm
Prof. Dr. med. Horst Sievert, CardioVasculäres Centrum Frankfurt (CVC) Deutschland
Ducksoo Kim, MD, Professor of Radiology, Boston University Medical Center, Boston USA
Dr. Salvatore J.A. Scalfani, MD, Professor of Radiology, SUNY Downstate Medical Center, New York, USA
David A. Koff, MD, Professor of Radiology, McMaster University, Hamilton, Ontario, Canada
Adnan H. Siddiqui, MD, PhD, Assist. Professor of Neurosurgery, University of Buffalo, New York, USA
On this site they also say that they have improved the Haacke protocol like this (hope I'm translating this right):
1. Combination of fast MRV in breath-holding technique (vasalva maneuvre?) followed by slow MRV in breath-holding technique for the lower neck and upper chest
2. Flow visualization along the IJV
3. Flow visualization of the azygous vein on the passing to the superior vena cava
4. Improved MRV of the chest and torso veins in equilibrium phase with repeated breath-holding technique
My questions are:
- How does this partnership with you and the other physicians look like?
- Would you recommend going there? (If someone has made the general decision for CCSVI diagnosis and treatment, that is)
- What do you think about the improvements to the Haacke protocol? Does this make sense to you?
I'm partly asking this because two of the members of the german ccsvi forum went there and weren't very satisfied (seems that they made the right "pictures" but then draw the wrong conclusions of it).
Again a big thank you
Oh and, what the heck is the equilibrium phase?