Other Names for this Disease
- Cerebral gigantism
- Distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development
Your QuestionI am a therapist in need of additional information regarding Sotos syndrome. Are there any support groups with local state chapters? I have a client that has been diagnosed with Sotos syndrome and I would like to refer the parents to a support group.
We have identified the following information that we hope you find helpful. If you still have questions, please contact us.
Questions on this page
The following organizations provide support for individuals with conditions such as Sotos syndrome.
Sotos Syndrome Support Association
P.O. Box 4626
Wheaton, IL 60189
Toll -free: 1-888-246-7772
Web site: http://www.sotossyndrome.org/
Child Growth Foundation
2 Mayfield Avenue
London None W4 1PW
Telephone #: +44- 20-8 995 0257
E-mail: email@example.com or firstname.lastname@example.org
Web site: http://www.childgrowthfoundation.org
The Arc of the United States (with local state chapters)
1660 L Street, NW, Suite 301
Washington, DC 20036
Web site: http://www.thearc.org
PO Box 241956
Los Angeles CA 90024
Web site: http://www.madisonsfoundation.org
- Sotos syndrome. Genetics Home Reference. June 2006; http://ghr.nlm.nih.gov/condition/sotos-syndrome. Accessed 4/15/2011.