The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
EURORDIS, European Organisation for Rare Diseases
Plateforme Maladies Rares
96 rue Didot
The EURORDIS, the European Organisation for Rare Diseases, is a voluntary organization that is dedicated to improving the quality of life of all those affected by rare disorders. Its purpose is to encourage research and development of promising therapeutic options for the treatment of rare diseases; to insure the best possible health care throughout Europe and the European Union for those affected by rare disorders; and to improve the overall quality of life of those affected by rare diseases. Additional goals include the stimulation of coordinated research efforts at the European level to increase the knowledge of rare disorders, their causes, and new and effective treatments; the provision of a European platform to a wide variety of national patient organizations to coordinate their actions at the European level; and the provision of a patient interest-driven mediator between all the various European structures and institutions that are involved in public health responses to the needs of persons with rare disorders.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.